You are currently browsing the monthly archive for March 2014.

Last night, after I finished entering in all the cash online and had made my final calculations, I was so excited to announce that our event raised a grand total of $112,793. Feeling satisfied and proud, I was eager to share. When I read the news of Rebecca Meyer’s latest MRI.

And it wasn’t good.

And sometimes it feels like we just don’t do enough. Like we just can’t act fast enough. All those thousands of dollars raised in her name and in her honor and what good will it do?  Sure, it may save some other child down the road and yes, of course, that’s noble and right and ultimately what we all want, but at this moment, for this child, for this family, they just want her. They’re not thinking about the new research we’ll get in two years or five years or ten years.  They need it now, they need it tomorrow.

You may be scratching your heads and thinking back to Sunday’s event and wondering, “Wait…was she there? Did I see this sick girl?” Well, yes, she was there. But no, you didn’t see a sick girl. She was well. Happy, vibrant, head full of hair, face full of light. She was very, very much alive.

She’s here last Friday, in pink head to toe, sticking out her tongue like any five-year-old should:

10003663_10152643814466679_2002954092_o

And here again, on Sunday, watching with glee as her older sister shaves her head in her honor:

And again, with her bald schoolmates around her (goodness, these Fairfaxians like to stick out their tongues, huh?):
10003725_10201614804307466_1811995004_o(1)

She is alive, goddammit, and she deserves to stay that way.

Advertisements

A couple of times on Sunday, I referred to people’s inner beauty, as in, “These girls are showing us what it means to be beautiful on the inside,” implying, of course, that they were no longer beautiful on the outside.  But I was all wrong.

They are indeed beautiful on the outside. I just needed my own definition of beauty challenged by them. By you. All of you.

Sunday was full of beauty; it was all around us.

This is the beauty of family: Father and son working together to save one of their own (and remembering to have fun in the process).

And this is the beauty of family: A father shaving in solidarity with his son, whose bald head took some getting used to.

This is the beauty of small people doing big things:

This is multiple generations of beauty: grandmother and granddaughter watching the mother shave her head.

Contemplation can be beautiful:
Courage can be beautiful:
And pride can be beautiful:
Beauty is young:
And old (relatively speaking, at least!):
And male:
And female:
And this is the beauty of friendship:

If you want a few more examples of beauty, check out the first wave of photos here. More to come shortly.

Over the past week, I’ve been called an inspiration, a powerhouse and — my personal fave — a force of nature. While that all makes me feel really, really good, this is not a one-woman-show, people. There is an army of volunteers who stand behind me and beside me without whom our event could never happen.

First of all, the barbers. They are on their feet shaving head after head after head for hours on end. They hunch over the little kids and let the very littlest stand up in the chairs. They calm the nervous shaking bodies and they comfort the crying. They laugh and they cheer and they do it with style.

So, a most enormous and heartfelt THANK YOU to Alex Quintana and his crew from Quintana’s: Theo, Mike and Jessica.

1796060_10152318563044310_632357820_o

And, of course, to the fabulous Shawn Paul, aided and abetted by Bethany and Angela.

1798942_10152318563724310_2127805163_o

Thank you also to Rachel and Megan from Kreate and Rick, Laura, Racheal and Caroline, without whom there would be no bald heads (and what would be the point of that?).

Thank you to my tireless Treasurers and Registrars: Becky, Ann, Christie, Nancy (mom), Mark (honey), Jennifer, Julie, Julie, Kristy, Brenna, Ashlie, and Melissa. No one could check in and no one could give money if it weren’t for your hard work (and what would be the point of that?).

Thank you to everyone who worked at the Bake Sale table, especially Shari, Sheryl, Joe, Simon, and Logan, and of course, to everyone who baked for the Bake Sale, even though I have no idea who you are or what you brought. When I headed over to start emceeing, there were maybe two items on the table and when I finished four hours later, there was only one item on the table and I asked a volunteer if there had been any food at all. “Oh yes!” she assured me, and she must have been right because it brought in an additional $338. Nicely done on that!

Thank you to Simone Quartell for donating the American Girl Doll and to Nancy, Nicole, Kristi and Amelia for selling raffle tickets. We made one little girl very happy, plus raised another $478 for cancer research.

Thank you to anyone and everyone who stepped in and did jobs small — sweeping up all the hair off the floor (Nancy and Caroline) — and big — taking all the beautiful photos which you will soon get to see (Dallas and Sagi).

Thank you to the City of Cleveland Heights for so graciously hosting us year after year.

Thank you to Jason for helping me celebrate my own knight in shining armor, Mark, as he was inducted into the Knights of the Bald Table. I think your bagpiping skills served a recruiting tool for next year and the year after that as we now have lots of little boys (and girls) eagerly awaiting their own knighthoods.

1658527_10152318599869310_1735909195_o1959706_10202408767438381_2041157432_n1459050_10152298500585575_216691851_n1920139_10152298500650575_621662649_n Typical that he’s helping me out during his own knighting, but
I couldn’t hold the microphone, the St Baldrick’s-issued wand and the script all at the same time!

And, of course, without question, the biggest, deepest, most well-earned THANK YOU to all the men, women, boys, and girls who shaved their heads or donated their locks on behalf of sick children. The entire room was overflowing with raw and honest examples of generosity and kindness. The incredible bravery of our shavees was matched only by their pure joy at having done something so special.

1920256_10102285338799754_903311900_n(1)

This is a composite of kids from Team Fairfax centered around Becca, in whose honor they all shaved. And, yes, those are four GIRLS in the pics on top, demonstrating the truest meaning of friendship. Braedan happily reported that no one was made fun of at school today (and good thing because if they were, I would have marched my ass in there and gone house on those kids whose classes I spoke to all day Friday) and that they were congratulated by many, many, many. He feels like they’re all part of something bigger, like they’ve shared an important life experience that has brought them closer (“even,” as he noted tonight with some amazement, “the girls”). It is a powerful lesson these children have learned together. And I am so glad to have been part of it.

I have a thousand other stories to tell and about that many photos to share so check back in the next few days. But for now, I simply say Thank You.

I am beyond exhausted so this will be the short one.

But I am also beyond thrilled and beyond touched and beyond awed by what I saw today. The incredible outpouring of support and love, friendship and bravery, kindness and generosity left me breathless.  I am so honored to have been able to bring this event to so many people and I am so moved by all those who have embraced it with such enthusiasm.

As of this moment, counting the $101,116 we’ve raised online and the $2,450 check we expect from the lunchroom competitions at Roxboro Middle School, and the Bake Sale and American Girl Doll proceeds, and the cash and checks turned in today, we should (at this moment in time) have raised $108,257.

Wow. Just wow.

My local readers: Please promise me that tomorrow, wherever you go about town, if you see a bald man, woman, boy or girl, you stop and tell them good job.  Good job, my bald friends, good good job.

In four more days, I will be surrounded by bald heads. In fact, many of you reading this will be surrounded by bald heads. In addition to the 160 registered participants at my event this Sunday (you read that right: 160 participants!), another 114 students will shave at University School on Friday (and yes, as of this moment in time, we ARE beating them in the fundraising department), plus 56 people at Rainbow on Friday morning, 180 in Rocky River on Saturday and 70 more at A. J.Rocco’s on Monday. So we should ALL be surrounded by bald heads by this time next week.

What an extraordinary year this is turning out to be.  I am completely blown away by the enthusiasm and generosity of spirit that this has generated in our community.  We have four elementary teams from the Cleveland Heights-University Heights district, plus Roxboro Middle School and two teams at Heights High, in addition to four elementary teams from Shaker, one from Lakewood and another 24-member strong team from Gesu School in University Heights.  Imagine what those school hallways will look like on Monday as those brave children walk proudly to their classes.

Oh, and have I mentioned the money we’ve raised? My initial goal was $60,000, but we are now over $70,000 and I think I need to up our current goal of $75,000 yet again. We have blown past every expectation I’ve had for what this year could become. More people, more schools, more money. I am so so thrilled (and a little nervous about how the whole thing will roll out on Sunday), but mostly I am moved.

I am moved by the number of young children stepping forward to stand in solidarity with those in treatment. I am moved by the number of girls and women (19 in all!) who are loudly proclaiming that how they look does not define how beautiful they are.  I am moved by the number of teachers sitting side by side with their students as live out this lesson in generosity. I am moved by the mothers and fathers and sister and brothers and friends of survivors and those currently in the fight who are saying, “You don’t have to go this alone. I am right here with you all the way.” I am moved and deeply saddened as I read through the donations on my participants’ pages and see how many people give “in memory” of someone.

We have lost too many people already. All of us have: parents and grandparents, siblings, friends and spouses, and — saddest of all — children. It doesn’t have to be this way. We can do better. The grants that St Baldrick’s awards to doctors and researchers truly do better; they are making a difference. And so are all of you, by shaving, by cutting, by volunteering, by raising money and by giving money. We are doing better.

www.stbaldricks.org/events/clevelandheights

March 2014
M T W T F S S
« Feb   Apr »
 12
3456789
10111213141516
17181920212223
24252627282930
31  

Archives

March 2014
M T W T F S S
« Feb   Apr »
 12
3456789
10111213141516
17181920212223
24252627282930
31